A leading national expert on sickle cell disease has backed a regional campaign instigated by the Centre to raise awareness of the condition.
The educational drive launched by the Centre alongside our funders and partners CLAHRC East Midlands coincided with World Sickle Cell Day, which took place on Monday, June 19.
Sickle cell is a blood disorder usually inherited in which red blood cells develop abnormally, and currently affects around 15,000 people in England.
During the day resources were shared on our website and social media, including an infographic factsheet called ‘Living with Sickle Cell Disease’ in a bid to educate and inform.
Dr Subarna Chakravarty, Consultant Paediatric Haematologist of Kings College Hospital spoke on SABRAS Radio, the Midlands’s biggest Asian radio station, as part of the campaign.
Dr Chakravarty talked about a research study into the subject and how it involved finding out about patient experiences in relation to the care they receive from the health sector.
She said: “People in society don’t really know about the condition”, adding: “We all have a role to play in understanding the condition exists as there is a lot of stigma.”
To listen to the full interview, click here.
