The clinical and cost effectiveness of internet-delivered self-help Acceptance and Commitment Therapy for family carers of people with dementia (iACT4CARERS)
What is the project?
Research shows that family carers of people living with dementia are at higher risk of mental health problems. The University of East Anglia are developing an online psychological training programme to support family carers of people living with dementia, iACT4CARERS.
The nature of family care in minority ethnic communities differs in comparison to White British families. In South Asian communities, caring responsibilities often fall to the daughter or daughter-in-law and therefore the South Asian carer population is younger than the White British carer population. Additionally, health service support for carers from minority ethnic communities is limited by a wide range of barriers to accessing services.
Given these cultural differences, The CEHR have supported this project by bringing together members of the community to co-develop this resource to ensure it meets the needs of diverse communities.
As we approach the large scale trial to assess acceptability and affordability, The CEHR have also worked closely with community members to develop recruitment videos in different languages to ensure our recruitment strategies reach diverse communities.
What is the aim?
The key aim of the project is to develop an online support programme, iACT4CARERS, available to family members supporting a person living with dementia across the UK. The research team are now conducting a large scale trial to find out if iACT4CARERS is helpful in reducing anxiety and is affordable. The team will also assess how iACT4CARERS can be successfully delivered to diverse carer populations in different healthcare settings.
Who is involved?
The University of East Anglia
The Centre for Ethnic Health Research
Community members
Useful Links
Contact
Barbara Czyznikowska – bmc15@leicester.ac.uk